Good: muscle tone is improving and much closer to normal. We still need to keep an eye on it, and James will still have to do physical therapy, but his daily examinations and his physical therapist think he's doing better. Please continue to pray for normal muscle tone.
Bad: Today he had a cookie swallow, which means they x-ray-filmed him taking bottles with different thicknesses of milk. He did best with the milk that is as think as honey, but he still aspirated on it. They are going to continue with the feeding tube (now in his nose) through the weekend and will do another cookie swallow on Monday or Tuesday. This gives us 3 good days to pray for this specific intention:
- James needs to take 30 ml of the honey-thick milk with no aspirations at the next cookie swallow, with continued success, so his feeding therapist will okay him having a bottle. This will put us on the path that leads to him at home without a feeding tube. It also leads to normal eating for the rest of his life.
This will be another mini miracle as the feeding therapist said it was one of the more severe cookie swallows she has seen.
Clarification: I don't know if I misunderstood this on purpose or accident - if that even makes sense! - but when James' doctor told me about the pathology report on the placenta she said there was "one true knot" and then said something about the midwife putting it there. So I believed that my midwife had tied off the cord. But I asked my midwife and learned that she did not tie off the cord, meaning the knot happened naturally, in the womb, and is probably the reason James had the trouble he did.
Scary thing I learned today: Jenny, our nurse friend who attended the birth, told me today that as soon as James was born she was worried. She said, "the only other time I've seen a baby that color was when I was carrying one to the morgue." Oh Lord God!
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