But first, the news we learned today:
Thanks be to God, James does not have acid reflux.
His bottle feeding is still inconsistent.
His g tube will be surgically placed a week from Wednesday (which is probably "today" for most of you reading this).
After the surgery it could be 2-7 days before he comes home. ([big parenthetical break coming] They've been telling us 7-14 days for about 25 days. That's kinda frustrating because I no longer trust the doctors when they give me a time frame, but I also think that 25 days ago they thought James would be home with a blank stare, monitor, ventilator, limp neck, and tightly folded thumbs. My little boy with big blue eyes just keeps wowing 'em.)
Sometimes babies with neurological problems (ie James) who have the g tube end up developing acid reflux.
Tomorrow we learn the results of the thrid EEG, which James had today. As you may remember, EEGs tell us about brain wave activity. His first was done while he was on the cooling pad. As an NP said, "It's telling us he's cold," meaning no activity. His second was done shortly after he was warmed. It showed "quite abnormal" activity.
I hope to God this third one shows much improvement.
The other day a different doctor did rounds with James. She had met him when he was first admitted, and when she saw him looking around, tracking things, finding her when she spoke, moving his body, and lifting and holding his head she was very impressed. "That's very good," she told me with a firm nod of her head and a slight smile. I've learned that's a pretty strong statement coming from doctors on our floor.
He is such a little miracle boy. I'm sure I don't seem like it, but I'm very grateful for all that God has given back to us. I always talk about wanting more and more but I recognize that we have already received much.
But now I'm gonna ask for more. Please pray that God heals my sons brain. Please ask that James be spared acid reflux and that his surgery goes well. Please pray for success in his bottle feedings.
And if parenthetical isn't a word, just let it slide.