Sunday, March 13, 2011

big days for James

1.  Today was James' first day of no phenobarbital!  wa-hooo!

2.  Tomorrow we visit the surgeon about having his gi button removed.  We are really hoping for this as we think that the button has created a lot of discomfort for our son.  Travis is coming with me because I'm all out of fighting and I'm anticipating having to fight a little bit.

3.  Tuesday James has his next cookie swallow.  We hope he will be able to move to a thinner liquid which will allow us to use my stored breast milk and also hopefully make James less -ahem- backed up.

4.  Thursday we see the physical therapist again.  Hopefully she'll note some more improvement in James, though I'm wondering when he'll do better with his push ups.

3 comments:

  1. To be fair, push ups are really hard. I can only do, like 7 with good form.
    Haha. I'm joking. :-)
    I hope all this stuff goes well! Keep us updated!
    xoxo

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  2. Praying for great results.
    Thank you for sharing little James with all of us :)

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  3. I hope everything goes well, prayers for all of you!

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