January 19, 2014

Home, Seizures, and Thank You's

Look who's home!

This past Tuesday Ben and L groggily found their ways out of their beds and back to the sofa with Travis and me. It was about ten minutes before eleven o'clock. We finished up the last few minutes of our show, watched Donna and the Doctor save the Oods, and then Travis carried Ben upstairs.

Travis then found JF, his shirt, and his pillow covered in vomit. He was very still, very pale, and his eyes were wide open. He was completely unresponsive. Thank God JF was still warm and his heart was racing because, honestly, for a moment I thought he was dead.

Travis called 911 and I prayed while I held my son.

We took his shirt off and put his robe on and I carried him downstairs. Travis turned on the porch light and opened the front door and we waited for the first responders and prayed and prayed and prayed.

For the second time in JF's life I watched as he and his daddy got into the ambulance and drove away.

The doctors believe that JF's seizure lasted an hour. An hour. It seems JF likes to do things for an hour: seizures and being dead. That booger.

From the ED, where he was intubated, he went to the PICU, where he was hooked to an ongoing EEG, and over the next 36 hours he had what the doctors called some kind of paradox reaction to a couple of the rescue medicines. The meds that would knock out any adult left JF very irritable and inconsolable. He's a strong boy and pinning him down so he wouldn't get out of bed, pull out his tubes, throw himself out of our arms, etc was exhausting. Physically and emotionally.

JF had many blood tests, a CT scan, an MRI, and a spinal tap. All tests came back normal. The final conclusion is that he had a seizure without a definitive cause correlating to the unresponsive hour. There's a 60% chance he'll have another one, especially in the next year, and so we'll have to watch him like a hawk, maybe get a helmet, definitely get a monitor for when he sleeps. 

 Amazingly, JF is even more verbal now than he was before the seizure. 


We want to thank everyone who helped us over the 4 days and 4 nights Travis and JF spent at the hospital. 

Thank you for the prayers. We know some mighty prayer warriors and I swear to you there was a direct correlation between when people were flooding Heaven with prayers and when there would be an improvement at the hospital. 

Thank you to my mom and mother-in-law who helped us so JF always had someone with him and our kids at home were in good hands.

Thank you to all the people who offered to help. Just knowing that so many people were so willing to extend themselves has humbling and appreciated.

Thank you to those who gave to us so we'd have enough gas in our cars to get to and from the hospital.

Thank you to my good friends G and T and K who just happened to contact me at times when I was tired and hungry and so gladly responded to my request for food.

And thank you to M's mom who took to Mass a chalice she has that belonged to Fulton Sheen and asked her priest to use it and pray for JF. (I mean, seriously! That is SO cool!)

God bless you all!

33 comments:

  1. Continued prayers for your family and James. Fulton Sheen, pray for us!

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  2. Look at that beautiful smiling face. I am so sorry for what he and your family went through. How terrifying. Praying right now for you all via Fulton Sheen. -Anne

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  3. I'm glad all the tests came back normal! Continued prayers.

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  4. Glad to hear he's home from the hospital, Bonnie. Continued prayers!

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  5. Will continue to pray. A relief to have normal test results. Will pray for you peace of mind as you watch and wait. What a beautiful child!

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  6. What a relief that you are back home with your sweet boy. Continued prayers for you all. Hang in there, mama!

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  7. And James is all like, "One miracle? What me be two miracles!" Praise the Lord for your amazing little man!

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  8. "The doctors believe that James' seizure lasted an hour. An hour. It seems James likes to do things for an hour: seizures and being dead. That booger."
    Read that and went from tearing up to cracking up. Love your sense of humor. Some kids are good at sports, others art; James' hobby seems to be miracles. Our whole family is relieved at the good news.

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  9. So happy that he is home! Also very happy that you had people on the ground supporting you.

    Praise God!

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  10. I'm so happy he's home! We'll keep praying.

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  11. Hi Bonnie. I'm new to your site. I found you via Haley's post about your blog awards. I loved the idea of supporting the many great bloggers, so I headed over. Unfortunately by the time I made it to your site on Friday night to help nominate blogs you were already closed for nominations. I did decide to check out your about page while I was here, and I stumbled upon your amazing story about your son James. I was so blown away by it that I shared it with my husband and mom. Then today I stumble upon this post about him. What an incredible journey you have been on with him. Prayers for your family.

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  12. And now I'm tearing up. I'm so happy you had/have so much support and that James is doing well. Hope that he's in the 40% that won't have a seizure again!!

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  13. Such good news that it's not anything too serious or complex. Scary about the high percentage of a repeat but at least you're now aware. He looks so happy to be home :)

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  14. Hi Bonnie, I just found your site via several other blogs that I have been reading for a few months. I will be praying for you and your family. Your courage and strength in faith is so inspirational!

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  15. Bonnie. I'm so glad James is home and happy.

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  16. Praying so hard. God has this difficult to discern plan for each of our lives and nothing is more difficult than watching our wee ones suffer. My heart is with you as you grow in His grace!!

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  17. How are you doing personally? I feel like the anxiety and fear hits me worse AFTER the PICU stay is over. Man, this NICU/PICU stuff is hard. I feel like the most normal among us would get PTSD symptoms. Nothing like watching your kid go into mortal peril to make every future bump, bruise, and vomit incident spike your anxiety level in the future. Peace and Love, Bonnie!

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  18. So wonderful to hear is he doing better. Prayers still coming from Michigan! xo

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  19. Wow, that is so terrifying! I am so sorry. Your son is a miracle and it's great to see his happy little face, safe and sound. God bless you guys!

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  20. Ooooh I am so very sorry. Praying so hard for you here. I have already told my own little Fulton about your son - be assured that he will be praying for you, too. ((hugs))

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  21. I am so so so happy to hear he is home and happy!!!!!!!!! I pray it never happens again, but if it does, you guys have so much faith and strength to overcome it. I'm in awe.

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  22. So very glad to hear he's home. And I'm so sorry you all went through this. I will pray for your sweet James and your family.

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  23. I can't imagine what a scary, crazy whirlwind that time was for you. I'm happy he is home safe with the family that loves him!

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  24. Hey Bonnie! How scary! I saw the messages on twitter and started praying for you guys. I can't imagine...

    so glad he is home. I will continue to keep your family in our prayer intentions.

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  25. I am so glad your little boy is home - and look at that happy face!! We've had a few trips to our local children's hospital that aged me about 10 years - it's amazing how fast kids bounce back the minute they feel better - I know it takes Mom and Dad a bit longer to shift out of that high stress mode - I so wish I could give you a hug! You and your sweet family are in our prayers :-) Oh and the chalice belonging to Fulton Sheen - WOW that is so cool!

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  26. Keeping all of you, especially James in our prayers. I am so glad he is home and doing good!
    The chalice, that is amazingly cool!

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  27. when my daughter was 16 mos. old she had a 90 min. seizure. She stopped breathing and the ER doc breathed for her through a straw. We did not think she would make it. But, God healed her too. Today, she is 33, a chemistry teacher and spent 3 years in formation to be a Catholic sister. She is God's girl all around, and I give all the glory to our powerful God!

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